May 17th, 2018 Minutes

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Attendees: Eric, Ingeborg, Mike, Kerry

Agenda:

  • Reviewed current draft of white paper with tableau section added, paper uploaded: https://phuse.teamworkpm.net/#files/2976383
  • Discussion of survey for future state of patient profile tools
    • The survey will have 3 sections (listed below) and the initial draft of the survey will be based on the Functional Characteristics documents put together by Eric and **Rebeka (https://phuse.teamworkpm.net/#files/2610284)
    • Graphic Patient Profiles (time-oriented display of patient level data)
    • Tabular Patient Profiles (Case Summary)
    • Patient Narratives


  • Each of the 3 sections above will be turned into a separate section in the survey and participants will be asked to rank each feature according to a scale, the current proposal is to have a scale of 1-5 (language to be determined)
    • Critical, eg would not consider using a tool without this feature
    • Very useful/important
    • Useful
    • Nice to have
    • Not needed
  • Goal to have draft survey for review at our next meeting on June 7th
  • Note: Eric will be at the PhUSE US Connect 2018 Event so there may be an informal get together there to discuss future state of subject level visualization.


Action items

  • Create draft survey for Graphic Patient Profiles based on Functional Characteristics document and any additional input (Ingeborg)
  • Create draft survey for Tabular Patient Profiles based on Functional Characteristics document and any additional input (Eric)
  • Create draft survey for Tabular Patient Profiles based on Functional Characteristics document and any additional input (Eric)